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It is argued that the sharing of such a narrative, within dementia care, reinforces carer attitudes of respect, understanding and acceptance.
The carer can now serve the dying with compassion, deep caring, professional knowledge, and comfort in the presence of the patient.
Putting relatives into care does not necessarily reduce carer stress8 and in some cases it may worsen it.
There were parallel concerns that in the course of enquiring about and arranging care, a user or carer may see several different people.
Second, women will incur travel costs when attending appointments and some might need to finance a substitute carer for their children or other dependents.
Making the best of the situation in adjusting to the role of carer seems to preserve a sense of continuity in the marital relationship.
This was undertaken when they noticed the carer had not been able to attend the carers' meetings.
Most qualified staff can remember learning something profound and illuminating from a former service user or carer.
Unlike in an institution, when a carer went ' off duty ', he or she was not replaced by another.
Fifty-two patients lived with their carer, 35 with parents and 17 with their partner.
Similarly, those with a better quality of relationship and with greater intrinsic motivations to care were more likely to report higher levels of carer satisfaction.
Increased awareness of carer issues among policy-makers, primary care trusts and professionals is motivating efforts to implement and evaluate initiatives.
The preoccupation of research with carers in their own right has been mirrored by a policy focus on direct carer-support.
Several researchers have explored the centrality of the carer in dementia care in terms of identity maintenance.
The essence of the process should be the perception, from the user's and carer's perspective especially, that it is co-ordinated, integrated and continuous.
